Director, Patient Advocacy US

What you will do:

Reporting to the Head of US Patient Advocacy, you will lead U.S. patient advocacy for the amyloidosis portfolio. You will build strategic alliances, bring patient and caregiver perspectives into decision-making, and advance initiatives that support diagnosis, disease awareness, access, treatment advances, caregiver resources, and improved health outcomes. Responsibilities may evolve with patient and business needs. 

You will be responsible for:

• Establish Alexion as a trusted, long-term partner to U.S. amyloidosis and other relevant patient communities by strengthening existing relationships and identifying new partnerships. 

• Shape and execute U.S. patient advocacy strategies and plans in partnership with Medical, Commercial, Corporate Affairs, Market Access, Patient Services, Marketing, Regulatory, Legal, and Compliance. 

• Advance access and equity through patient-partnered alliances and initiatives informed by the lived experience of patients and caregivers. 

• Connect patient groups with information and resources, build collaboration across communities, and coordinate disease-specific and cross-disease engagement with U.S. and global colleagues. 

• Gather, share, and integrate patient, caregiver, and patient advocacy group insights to shape Alexion programs, research, activities, strategies, and decisions. 

• Represent Patient Advocacy on relevant cross-functional leadership teams and externally at patient-focused congresses and meetings; lead internal patient-centricity sessions. 

• Align with other AstraZeneca business units, create meaningful connections between patient groups and Alexion leaders, and manage projects, agencies, vendors, and budgets effectively. 

You will need to have:

• Bachelor's degree with 10+ years of progressive industry or relevant professional experience, or 7+ years of patient advocacy experience. 

• Strong knowledge of and established connections within the U.S. rare disease advocacy community (amyloidosis advocacy connections a plus) 

• Ability to lead through influence and work effectively across a complex matrix. 

• Broad biopharma knowledge, including drug development, HEOR, product launch, access and reimbursement, commercialization, and compliant patient engagement. 

• Strong understanding of legal, regulatory, compliance, and other requirements affecting biopharmaceutical patient engagement. 

• Excellent communication, judgment, discretion, interpersonal skills, integrity, and ability to manage sensitive or complex patient issues. 

• Demonstrated ability to build internal and external partnerships, manage agency partners, prioritize shared goals, and perform effectively in a fast-paced, evolving environment. 

• Excellent project, agency, vendor, and budget management skills, with ability to travel and perform the core communication, collaboration, analytical, and problem-solving requirements of a field-based role, with or without accommodation. 

Date Posted

Closing Date

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